I have been looking forward to today for a long time. I am meeting with a parent who's child also has spinal muscular atrophy. We will be meeting at my office a.k.a. Starbucks. Why am I so excited about this? It's because today I get to give the gift of hope. For someone who is 47 years old living with SMA (spinal muscular atrophy) I'm doing extremely well. I have had a somewhat lucrative career, a wonderful marriage and now I spend my time chasing my bliss and volunteering with many community groups. I would say that have a full and wonderful life.
If I had a child with SMA I would be terrified and worried about what the future would hold. Today I hope to give a gift, the gift of hope. Granted everyone I know who has SMA has a unique set of problems. This does not mean that most of them can't be dealt with and life can be beautiful.
Many people I know with SMA through various Facebook groups despise being called an inspiration. I don't find the fact that I get out of bed every day and make myself somewhat presentable before I go out inspiring. However if a parent is inspired and is hopeful after talking to me and learning about my life I think being an inspiration rocks. If I meet a child with SMA and after meeting me they realize for the first time that they can have a career, be married and live a full life then I truly feel like I have a purpose. I have been inspired by people and to me they have given me a gift. I would like to share the gift of inspiration today.
This is the best you are going to get out of me without my 1st cup of coffee.😉. I am going to put on my make up, over accessorize and hopefully give someone the gift of hope. Look around you today, there might be somebody right there who needs you to give them the gift of hope.
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